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  • Medicines Repurposing Statement

    Medicines Repurposing Statement

    Proleukin – Medicines Repurposing pathway update One important potential route to patients getting access to Proleukin is the NHS Medicines Repurposing scheme (MR).

  • Mirocals Open Letter

    Mirocals Open Letter

    ”Proleukin has the potential to be a game changer for people living with MND/ALS. The Mirocals trial was funded by charitable donations and tax payers – there is no excuse for not getting Proleukin to patients as soon as possible” Nicola Waters – Patients United2EndMND Mirocals Open Letter In our Proleukin (Interleukin 2) rolling update…

  • Proleukin Update Statement

    Proleukin Update Statement

    ”People and families have waited far too long for the hope of a treatment for MND. We demand the release of the Mirocals paper immediately and access to Proleukin.” Stephen Darby – Patients United2EndMND Proleukin (Interleukin 2) Update Being part of the MND community, readers will no doubt be aware of the recent social media…

  • Proleukin Statement

    Proleukin Statement

    ”Proleukin will give me more time to be her Mother. More time to guide, nurture and love her. Without Proleukin I will die sooner than I need to. The delay in getting this drug to patients is unacceptable and we will not tolerate inaction. People with MND deserve and demand treatment” Emma Moss – Patients…

  • Awareness Day update

    Awareness Day update

    United2EndMND Update – Global awareness day and more It’s time for an update! In this short post we discuss the very latest on the current status of the £50m funding commitment rollout, from the UK government, and the promising low dose Proleukin (Interleukin 2) treatment candidate.

  • MNDA Taskforce on Interleukin 2 – FAQs

    MNDA Taskforce on Interleukin 2 – FAQs

    The MND Association has published a series of very informative questions and answers in relation to the exciting MND treatment candidate low dose Interleukin 2. You can read them here. Most importantly we await the full publication of the trial results.

  • MNDA Taskforce on Interleukin 2 – What does it mean?

    MNDA Taskforce on Interleukin 2 – What does it mean?

    On Friday 28th April the MND Association announced something very important for our community – preparation for the potential arrival of effective treatments with regulators, scientists, government and, of course, patients. Patients are working with the MND Association to ensure the fastest possible access to promising treatments, if and when they arrive. This is vital work and very timely.

  • Institute up and running!

    Institute up and running!

    Our Institute is up and running! The first Board meeting of the new UK MND Research Institute took place last month (March 2023) and reported on progress. The scientists, who are part of the Institute, have been very busy submitting applications for the £50m funding that has been ring-fenced by the Government for MND. This is…

  • Taking positive action from Government Roundtable

    Taking positive action from Government Roundtable

    As promised here is the united2endmnd coalition statement on the ministerial roundtable held with Secretary of State for Health and Social Care Steve Barclay on the 2nd February 2023.

  • Speech today at Steve Barclay’s Ministerial Roundtable

    Speech today at Steve Barclay’s Ministerial Roundtable

    Ministerial MND Research Roundtable – Our speech today At todays ministerial roundtable hosted by the Secretary of State for Health and Social Care, Steve Barclay, David Setters, on behalf of patients United2endmnd gave the following speech. We will be providing a full report on the roundtable outcome in a few days. The roundtable was specifically…

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