Tag: Mirocals

Next Wednesday, March 13, the All Party Parliamentary Group (APPG) on MND will meet in Parliament. The APPG is a chance to brief MPs on the most important issues of interest to the MND community.

Mirocals Update Feb 13th 2024 Here is our regular update on Mirocals. Our main Mirocals page has also been updated and, sadly, there is again effectively ‘no update’.

Fighting hand in hand – Mirocals update Sadly, and frustratingly, we still await the Mirocals trial results, 13 months after the top line data was released and some 18 months after the trial ended. We hear you all saying, “That’s the same old update!” Yes, and you would be right. 

Proleukin – Medicines Repurposing pathway update One important potential route to patients getting access to Proleukin is the NHS Medicines Repurposing scheme (MR).

”Proleukin has the potential to be a game changer for people living with MND/ALS. The Mirocals trial was funded by charitable donations and tax payers – there is no excuse for not getting Proleukin to patients as soon as possible” Nicola Waters – Patients United2EndMND Mirocals Open Letter In our Proleukin (Interleukin 2) rolling update…

”People and families have waited far too long for the hope of a treatment for MND. We demand the release of the Mirocals paper immediately and access to Proleukin.” Stephen Darby – Patients United2EndMND Proleukin (Interleukin 2) Update Being part of the MND community, readers will no doubt be aware of the recent social media…

”Proleukin will give me more time to be her Mother. More time to guide, nurture and love her. Without Proleukin I will die sooner than I need to. The delay in getting this drug to patients is unacceptable and we will not tolerate inaction. People with MND deserve and demand treatment” Emma Moss – Patients…