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  • Status update

    Status update

    Status Update: February 2022 It’s now almost 3 months since the UK government committed a wholly new game changing £50m investment for MND Research.

  • The best road to a cure – the importance of following the science

    The best road to a cure – the importance of following the science

    The best road to a cure – the importance of following the science Following the news at the end of 2021 that the UK Government has committed an historic £50m over the next 5 years to targeted MND research, we thought it timely to reiterate the ground breaking research plans which underpinned our campaign. Because…

  • A new dawn

    A new dawn

    What a year!? We are all living through historic times. But, as a community we have, during these challenging days, achieved a truly first of a kind UK government commitment.

  • Funding Principles

    Funding Principles

    After the sensational news from our Prime Minister in November, the real work starts now! How is the money to be allocated? When will we know, etc?

  • Boris Commits to United2EndMND

    Boris Commits to United2EndMND

    UK Government commits to United2EndMND plan and innovative funding proposal November 14th, 2021, was an historic day in UK MND Research funding history. Prime minister Boris Johnson announced his support for and, more vitally, committed to investing a new £50m of funds for targeted MND research over the next 5 years.

  • Threshold Funding

    Threshold Funding

    Bringing hope to MND patients – the changing status of research and how threshold funding will make a difference Back in 2014, the now legendary Ice Bucket Challenge spread around the globe raising significant funds for the MND/ALS cause. In the UK alone about £7m was donated by our very generous public in just 2…

  • Budget statement

    Budget statement

    Statement from PatientsUnited2EndMND following the Budget 27/10/21 The United To End MND campaign is calling on the government to invest £50million in targeted MND research. The following is a statement from the coalition members following the announcement of the Autumn Budget and Spending Review 2021: Please note, this IS a disappointment, but we are confident government is…

  • Why is a new funding model needed?

    Why is a new funding model needed?

    United2EndMND is a coalition of scientists, charities and patients.  We have presented a detailed five year plan to the Government setting out how we can find a cure for Motor Neuron Disease and help cement the UK as a leader in this field of science. That submission is currently being considered by the Government as part…

  • Spending Review Action

    Spending Review Action

    As you are aware, the coalition of patients, researchers and 3 MND charities (My Name5 Doddie Foundation, MND Association and MND Scotland) recently delivered a letter to Boris Johnson in support of our submission for the forthcoming spending round. Importantly, this closes on the 27th October and there is unlikely to be another review for…

  • United2EndMND Presents to parliament

    United2EndMND Presents to parliament

    Parliament Visit 2021

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