I was diagnosed with MND in September 2012. I now need 24/7 care, but the relatively slow progression has given me the opportunity to get involved in campaigning, awareness raising, signposting and fundraising activities.

I am inspired by the resilience and determination which runs throughout the MND community. Hearing the stories of others affected by this horrendous condition, especially those with young families, is what gets me out of bed in the morning to see what I can do as a team with others to improve things.

Personally, I’m fortunate to have a great support network of family and friends (many from my amateur sporting days and my business life) who get involved with all of these activities. I have 3 married sons and recently we were blessed by the arrival of our first grandchild. I hope to see several more!