United 2 End MND working with the leading charities & researchers
Please find below our latest news items. Just click to read. And why not subscribe to receive an email whenever we post any important news?
Moving forward with the UK MND Research Institute
Moving forward with the UK MND Research Institute It is now approaching five years since the United2EndMND £50 million government campaign was born that led to the creation of the UK MND Research…
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Tofersen Access Community Update
Tofersen Access Community Update Six weeks have now passed since Dr Rachel Jakeman delivered a petition and open letter to No.10 Downing Street calling for urgent action to improve access to tofersen,…
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Tofersen petition and open letter handed to No. 10
Tofersen Access – UK Government failing to ensure effective drug reaches eligible patients Almost 2 years ago we posted about the first truly effective treatment for any form of MND, tofersen (for…
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Covid-19 Boosters – Statement by UK Leading Neurologists
Covid-19 Boosters in the UK – Statement This autumn is the first since the Joint Committee on Vaccination and Immunisation (JCVI) changed its policy on who can receive Covid-19 vaccination boosters following…
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Breaking the mould?
Breaking the mould? More news this week from the EXPERTS-ALS platform. EXPERTS-ALS, the first flagship project of the UK MND Research Institute, has been now operational for about 8 months. Five drugs…
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New page on our website
New UK Trials page on our website We have recently added a new page to our website, UK Trials. This page is a simple summary of the current UK hosted disease treatment…
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United2EndMND Statement on MIROCALS results
United2EndMND Statement on MIROCALS results It’s now been nearly three years since completion of the MIROCALS Phase II trial and two and a half years from the announcement of the top line…
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UKMNDRI – The Role of the Discovery Network
Collaboration in MND Research: The Role of the Discovery Network We have been excited to hear about the fantastic work being undertaken by My Name’5 Doddie Foundation, (one of our major partners,…
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LifeArc Translational Science Summit MND & Rare Dementias
LifeArc Translational Science Summit on MND and Rare Dementias – a patient view Collaboration is vital in research for complicated neurodegenerative diseases, especially with MND. LifeArc, a funder of innovative research in…
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United2EndMND – committed to the acceleration of MND research
United2EndMND Committed to the acceleration of MND research United2EndMND is committed to promoting the acceleration of MND research towards meaningful treatments and, ultimately, a cure through a robust and collaborative scientific plan led and…
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