Dr Luke Hames-Brown
I am a Doctor specialising in General Practice with an interest in Search and Rescue Medicine having been a doctor in both Mountain and Lowland Rescue.
Over three years since my symptoms began I think of myself as fortunate that I seem to have a relatively slow progressing form of this disease. I want to use this to make a difference, to advocate for those affected by MND.
When I was first told I might have MND I said that I wanted to do something to raise money and awareness, to try and help reach a point where others didn’t have to feel the same fear and devastation that my family and I did. I subsequently took on the challenge of walking the 84 mile length of Hadrian’s Wall to raise funds for My Name’5 Doddie foundation and the MNDA. I have remained involved in fundraising since and have become involved in research through My Name’5 Doddie foundation Discovery Network (advisory board member) and I am a member of the Independent oversight committee for the UK MND Research Institute (UKMNDRI).
As a patient and clinician I strongly believe in the vital importance of a coordinated approach to fundraising, campaigning and research. I believe that by working together, the MND community can achieve our dream of effective treatments, and ultimately a cure for this disease.
MND can dominate and define lives, however, we can control the narrative of that definition by using our voice and our determination to push for change.
We are United2EndMND - Changing the conversation 