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Please find below our latest news items. Just click to read. And why not subscribe to receive an email whenever we post any important news?
Covid-19 Boosters – Statement by UK Leading Neurologists
Covid-19 Boosters in the UK – Statement This autumn is the first since the Joint Committee on Vaccination and Immunisation (JCVI) changed its policy on who can receive Covid-19 vaccination boosters following…
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Breaking the mould?
Breaking the mould? More news this week from the EXPERTS-ALS platform. EXPERTS-ALS, the first flagship project of the UK MND Research Institute, has been now operational for about 8 months. Five drugs…
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New page on our website
New UK Trials page on our website We have recently added a new page to our website, UK Trials. This page is a simple summary of the current UK hosted disease treatment…
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United2EndMND Statement on MIROCALS results
United2EndMND Statement on MIROCALS results It’s now been nearly three years since completion of the MIROCALS Phase II trial and two and a half years from the announcement of the top line…
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UKMNDRI – The Role of the Discovery Network
Collaboration in MND Research: The Role of the Discovery Network We have been excited to hear about the fantastic work being undertaken by My Name’5 Doddie Foundation, (one of our major partners,…
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LifeArc Translational Science Summit MND & Rare Dementias
LifeArc Translational Science Summit on MND and Rare Dementias – a patient view Collaboration is vital in research for complicated neurodegenerative diseases, especially with MND. LifeArc, a funder of innovative research in…
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United2EndMND – committed to the acceleration of MND research
United2EndMND Committed to the acceleration of MND research United2EndMND is committed to promoting the acceleration of MND research towards meaningful treatments and, ultimately, a cure through a robust and collaborative scientific plan led and…
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EXPERTS-ALS Accelerating MND Drug Development
EXPERTS-ALS Accelerating MND Drug Development You may have seen the recent news from the UK MND Research Institute announcing that one of its first projects, EXPERTS-ALS, funded by the NIHR from the…
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UK MND Research Institute: Updates for late 2024
UK MND Research Institute: Updates for late 2024 As we move towards the end of 2024, having recently marked the 1st anniversary of the formal launch of the UK MND Research Institute,…
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MND Association Campaign on Tofersen Access
Following our post in April 2024 regarding the concerning and emerging situation with access in the UK to the first global proven truly effective therapy for MND, Tofersen for inherited genetic SOD1…
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